On September 30th, 2008 the final diagnosis came back. Megan has I-Cell. Other wise known as ML II. She is doing well considering the news. She is in Kindergarten and loving it!! She struggles but with time and consistency she should be doing better. We are so so proud of her!
Since then Megan has been to Cincinnati Childrens. They thought she may have had an infection in her Port-a-cath, but she didn’t. We met the staff from the STAR Center for Lysosomal Storage Disorders. I am still optimistic. We have found a wonderful peds Dr in Hillsboro. Hopefully things start running smoothly. I will update when I have updates.
Till then....
Hugs,
Lissa
Since then Megan has been to Cincinnati Childrens. They thought she may have had an infection in her Port-a-cath, but she didn’t. We met the staff from the STAR Center for Lysosomal Storage Disorders. I am still optimistic. We have found a wonderful peds Dr in Hillsboro. Hopefully things start running smoothly. I will update when I have updates.
Till then....
Hugs,
Lissa
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